Thursday, 28 May 2015

Acanthamoeba Keratitis Blog 8 (28/5/2015)


It's about time I did another one of these. In my last post I said: "I'll make a longer update after my next eye clinic appointment on the 16th February".

So yeh. That never happened. Apologies.

That was over 3 months ago, and my eye still seems to be doing good! I've heard of people getting relapses many months and/or years after having the disease seemingly defeated, so it's not guaranteed that it's gone forever. But still, I have had nearly 4 months now without any trouble! That's as much time as the disease itself lasted.

That's all I think I have to say for the moment. It's probably safe to assume that I won't make another update after this (unless I have a relapse). In which case, thank you all for reading and I hope that this has helped others who are suffering through this horrible disease.

Saturday, 7 February 2015

Acanthamoeba Keratitis Blog 7 (7/2/2015)

  • 119 days since first symptoms
  • 4 days until expected clearance date
Just a quick update. Eye seems to be doing ok since I started to reduce the eyedrops, although it felt slightly irritated the last few days. This could be put down to the surface layers of the eye healing. Hopefully the bastard amoebae stay away now. I'll make a longer update after my next eye clinic appointment on the 16th February.

Wednesday, 21 January 2015

Acanthamoeba Keratitis Blog 6 (21/1/2015)

  • 102 days since first symptoms. 
  • 21 days until expected clearance date.
Hiya. Some very good news. At my eye clinic appointment today, I was very pleased to learn that it appears that the amoeba is gone from my eye! :D :D :D :D :D

 Now, it's not 100% certain just yet, there could be other parts of my eye where it may be hiding, but I was told to start gradually reducing the amount of eye-drops I'm taking and see how that goes. Fingers crossed now that it's gone for good! I'm so incredibly happy that this horrible fuckin disease has an end in sight. I would also like to extend a massive thank you to all the lovely doctors and nurses at University Hospital Limerick for guiding me through this, as well as my friends and family for putting up with my perpetual whining over the last few months.

Also, to all of my friends who are also contact lens wearers, for the love of god, don't fuck around with your contact lenses. Don't wear them when you sleep; don't wear them swimming; if they're dailies, don't re-use them; if they're monthlies, make sure you fuckin clean your contact lens case EVERY DAY, don't store them in water, and use the correct type of contact lens disinfectant. Not following these precautions properly left me with a fucked up eye for 4 months, and that's just the mild version of the disease. More severe versions can result in the need for a cornea transplant, or even having the eye removed altogether. I only just about narrowly avoided this. So yeh. To reiterate my point: DON'T FUCK AROUND WITH YOUR CONTACTS.

Sunday, 4 January 2015

Jamie Anger Rant 1

Hiya. This is in no way me procrastinating from my super important Interim Report. Not at all. Not one bit. BUT, I've been seeing a lot of people sharing petitions to stop Channel 4 from airing a comedy program about the famine.

Ah now. You can't be at that.

Because that folks, is CENSORSHIP.

And censorship is a very bad thing. Nothing should be off limits when it comes to art. Nothing. You can't be ok with making fun of one thing, but as soon as it is something that relates to you or your culture, be like "NOPE, THATS NOT OK. FUCK THAT. PETITION". It's sorta similar to what happened with The Interview recently (minus the cult of personality and nuclear weapons). Or like the time Isaac Hayes left South Park cuz they made fun of scientology. He was grand when they were poking fun at every other religion, but when it came to his, he just fucked off. That's not ok. That's prickish behaviour. To paraphrase Matt Stone "when you start saying this and this and this are ok to make fun of, but not this, then that is when the real bigotry begins". Anyway. I'm bad at words, and I realise my point isn't very focused, but The Rubberbandits and Charles put it better than I ever could.

Friday, 2 January 2015

Acanthamoeba Keratitis Blog 5 (2/1/2015)

  • 83 days since first symptoms. 
  • 40 days until expected clearance date.
Hello there. Hope you are all keeping well and have had a good 2015 thus far. My eye has remained largely unchanged in the last two weeks. It's a lot better when compared to a month or two ago, but at this stage it's seemed to reach a static state of "It's fine". That said though, the doctor told me today that there are only a few micro-cysts left in my eye, which is definitely a good thing! There is, after three months, finally an end in sight. Who knows? Maybe my little guess-timation at the top of each blog post will be correct after all. Knock on wood.

There is still, as there always has been, the risk of a flare up. And if that were to happen, I'd be back to square one again. That would be completely and utterly heart-breaking. But, it's important to stay optimistic... albeit cautiously optimistic!

Beyond that, there's not really much else to share with you without delving into my personal life, but that's for another day. I'm looking forward to the blog post where I can finally declare that I am free of Acanthamoeba Keratitis. Could be a month, could be 6 months, could be a year, could be 6 years. One of the most irritating things about this disease is how unpredictable it is. But at least with the direction it seems to be going, it looks like there could be an end in sight soon!