Saturday, 8 November 2014

Acanthamoeba Keratitis Blog 2 (8/11/2014)

  • 28 days since first symptoms.
  • 95 days until expected clearance date.
Hello. Week 4 of this disease has just gone past, so I'm nearly a month in. AND. I. AM. FUCKING. SICK. OF. IT.

But. I'm doing ok. Again, I need to emphasize how incredibly lucky I am. Reading other accounts of this disease, it is around this mark where the incredibly excruciating terrible horrible pain is supposed to kick in. But luckily, I have no pain. This is due to how early mine was diagnosed, and how quickly I was given the correct treatment. Again, many thanks to the wonderful doctors and nurses at Limerick Regional Hospital. In particular, Dr. Jeremy O'Connor, who has been absolutely fantastic. Reading all the accounts of the disease, I got myself all worked up thinking I had immense pain and corneal transplants ahead of me. But he put my mind right at ease, and assured me that I had largely been spared of these consequences due to mine being diagnosed so early. He did say there is a VERY MINOR chance I would have to get a corneal transplant. We'll cross that bridge when it comes to it. Even if that does happen, at least the silver lining is that I could end up with two differently coloured eyes. I'D BE JUST LIKE DAVID BOWIE.

SO HOW IS MY EYE. It's slightly better. Some white has started to return, and the sensitivity to light has eased off slightly. I've even, quite courageously, OPENED MY EYE a few times. AND TO ALMOST NO PAIN OR EXCESSIVE DISCHARGE. almost none. So, again, I am incredibly lucky. It could be SO SO SO much worse. Google Acanthamoeba Keratitis, and you will be given a plethora of horror stories. There's a part of me that's a little afraid that maybe it's all still ahead of me, the horribleness. But that's just paranoia. And it's best to avoid paranoia in this situation. It's a slippery slope.

As for my eyedrops, I'm still on the same stuff. Getting a hold of the Polihexanide 0.02% has been a bit of a pain in the arse, lots of paperwork cuz it has to be ordered in especially from the UK. I had to fill in a special form for the HSE so that I don't have to pay €140 for it. BECAUSE FUCK PAYING €140 FOR ONE FUCKING BOTTLE OF EYEDROPS. Sorry, I keep shouting in this blog. I'M JUST SO FULL OF RAGE. Also, apparently the factory that makes the Polihexanide 0.02% EXPLODED. IT FUCKING EXPLODED. WHAT. srsly, wots goin on? lol

Feelings. How am I feeling? Better. I've sorta stopped giving a fuck about the fact that I look like a squinty one-eyed weirdo to everyone. Because there's not much I can really do about it, it's just the way things are and I have to deal with it. An interesting thought occurred to me the other day. I remembered when I was little, about 3 or 4 years old, an ad came on telly, a charity add, talking about how African children are getting bacterial infections in their eyes making them go blind, accompanied with graphic imagery of the children's eyes. This fucking terrified me, sent me into hysterics as a child. I remember just hysterically crying in my mother's arms, and her telling me not to be afraid because it would never happen to me. But here I am, with amoebae having invaded my cornea. Amoebae that have been known to make people go blind. The thing that scared me so much as a child is actually happening to me.

Talk to ye next week.

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